Category Archives: Myeloproliferative Neoplasms (MPNs)

Myeloproliferative Neoplasms (MPNs) are rare chronic blood cancers that include Essential Thrombocythemia, Polycythemia Vera, and Myelofibrosis.

Beating the Odds Starts with a Swab

When I began this journey 3 months ago, I was pretty confident that one of my four siblings would be my match (a 10 for 10 match of HLA-types; it’s not about matching blood type).  Each had a 25% chance, so wouldn’t 1 of the 4 have to match?   That’s not how probabilities work, I learned. … Read More »

Blood Stem Cell Transplants in the 21st Century

When I first heard about bone marrow transplants, I envisioned the donor getting drilled in the hips for bone marrow extraction (like the bone marrow biopsy and aspiration) and then a surgeon drilling into my large bones to implant the donor marrow. I am happy to say that I was way wrong!In most cases, blood… Read More »

How We Chose the Transplant Center for Me

After an absolutely wonderful escape to Sicily, Robert and I returned home ready to tackle the next big adventure.  Where should I go for the stem cell transplant?  Who will be my donor? Robert, Mom, and I met with Dr. Lawrence Morris of Bone and Marrow Transplant Group of Georgia in Atlanta. This group is… Read More »

These Tired Bones Need a Makeover

After several days of tests and consultations with experts at Mayo Clinic Scottsdale, I returned home with a worse-than-expected diagnosis. Here’s the quickie Bad News/Good News version:My bone marrow has gone from over-achievement to under-achievement. Instead of producing too many red blood cells, it is now in the “spent phase” and is not producing enough… Read More »

Let’s Kick It Up a Notch (or more) — to Mayo Clinic

I had a Bone Marrow Biopsy done at Northside Hospital on January 24th. The bone marrow biopsy and aspiration report came back with some news:  lots more reticulan fibers and fibrosis “consistent with post-polycythemic myelofibrosis.”  The report didn’t look good from this patient’s perspective but I was pleased that I wouldn’t have to wait too long… Read More »

Yippee! It’s Time for Another BMB

I never thought I would look forward to getting another bone marrow biopsy & aspiration, but today I am eager for new information.  The first BMB was done in March, 2010.  It will be interesting to see how my busy bone marrow has changed in almost 3 years. Why a BMB Now?In 2012, the first few… Read More »