Category Archives: Fatigue

I Blame the Hemoglobin

There seems to be an inverse relationship between my Hemoglobin level and Anxiety level. Hemoglobin is a protein in the red blood cell that carries oxygen through the body. As the hemoglobin decreases, I become more easily annoyed — with myself and everyone around me. I get the anemia double-whammy from the alpha thalassemia trait (red cells are… Read More »

Let’s Play Medical Pinball!

Apparently, I’m a slow learner.  I believe that when things/people/events show up in one’s life they present opportunities for introspection, learning and growth.  Sometimes it’s to practice patience, listen better, explore other perspectives, remember to be grateful. The latest “opportunity” in my life is arthritis and chronic pain.  I’ve been dealing with increasingly frequent and more… Read More »

Myeloproliferative Neoplasms Conference – Day 1 Highlights

More than 200 cancer patients, supporters, and physicians/researchers gathered at Mayo Clinic Scottsdale this morning at 8 am to begin a lively conference about the state of knowledge and treatment of the Myeloproliferative Neoplasms — Essential Thrombocythemia, Polycythemia Vera, and Myelo Fibrosis. Dr. Ruben Mesa opened the session and welcomed everyone and reminds us that… Read More »

It’s official — I do have a brain

Today was the only day this week without a medical appointment, but I did receive two bits of news.First, Kaiser approved a referral to an MPD specialist at Emory University Hospital — I’m very happy to be able to get the perspective of someone who works with a lot of patients with a myeloproliferative disorder.… Read More »