Category Archives: MPN Conferences

Gender & Myeloproliferative Neoplasms (MPN)

Any parent of boys and girls will confirm that there are differences between the genders that are not based on social conditioning. Yet much of the research for decades had mostly male subjects; what was learned was applied to women. That’s why I was so excited to learn about the newer MPN research that teases… Read More »

MPNs Gain Attention of Hematologists

In case you haven’t heard, hundreds and hundreds of hematologists gathered in Atlanta, Georgia for the 2012 ASH (American Society of Hematology) conference this past week.Until I was diagnosed with Polycythemia Vera, I had no inkling how complicated our blood is.  I also didn’t realize how much ‘we’ (including the medical and scientific communities) don’t… Read More »

The Traffic Jam Within: A Primer on Blood Clots and Thrombosis

The 6th Annual International MPN Patient Symposium began with Dr. Babette Weksler giving us a fascinating overview on the invisible threat to people living with Polycythemia Vera (PV) and Essential Thrombocythemia (ET):  thrombosis. Dr. Weksler is with the Weill Cornell Medical College and Center.  She has studied and treated patients with thrombosis for over 35 years.  Dr. Weksler focuses on… Read More »

A Few Quick Thoughts from the 2011 MPN Patient Symposium

I just got back home from the whirlwind trip to New York City for the 6th International Patient MPN Symposium sponsored by the MPN Research Foundation and the Cancer Research & Treatment Fund.  The day was filled with fascinating speakers (several of whom were new to me) and each of them taught me something new.… Read More »

Tired of the Rat Poison? Alternatives to Warfarin (Coumadin) are Available

Friday afternoon I received a phone call from Andrea, my Anti-coagulation Pharmacist at Kaiser.  She wanted to know how I’m feeling and what’s been going on with me.  It wasn’t a personal call;  I had my blood drawn earlier in the day and the results came back:  my Prothrombin Time PT/INR was 5.7.  This is… Read More »

2011 Myeloproliferative Neoplasms Conference – Day 2 Highlights

All the powerpoint presentations from the conference will be available through the MPD Net listserv sometime in the next week or so (let’s give Ian, Antje, and Bob time to get home and back to their computers). The morning began with Dr. Richard Silver, Director of Leukemia & MPD Center at Weill Cornell Medical College.… Read More »

Myeloproliferative Neoplasms Conference – Day 1 Highlights

More than 200 cancer patients, supporters, and physicians/researchers gathered at Mayo Clinic Scottsdale this morning at 8 am to begin a lively conference about the state of knowledge and treatment of the Myeloproliferative Neoplasms — Essential Thrombocythemia, Polycythemia Vera, and Myelo Fibrosis. Dr. Ruben Mesa opened the session and welcomed everyone and reminds us that… Read More »

MPD Foundation’s latest Symposium & Other Good News

Those of us living with rare bone marrow-based blood cancers (myeloproliferative neoplasms) can find helpful information and support through the MPD Foundation (www.mpdfoundation.org). Based in Chicago, the MPD Foundation sponsors patient-physician symposia across the United States, stimulates research for new treatments (and eventually cures), and fosters collaboration in many ways. I’m a big fan of… Read More »

Report from the symposium on Living with a Blood Disease at the Mayo Clinic

Under the leadership of Dr. Ruben Mesa of the Mayo Clinic – Scottsdale, a great symposium was offered to patients living with blood cancers and their caregivers on May 8-9, 2010.    The symposium was held in the land of nice (the Mayo Clinic in Rochester, MN).   I call it “the land of nice” because… Read More »