Tag Archives: blood stem cell transplant

3rd Annual Swab Drive at Mtn. Pointe High School Breaks Record

I had the honor to take part in Mountain Pointe High School’s 3rd Annual Be the Match swab drive on May 8, 2015 in Tempe, Arizona. Organized by the Foreign Language Honor Society with the leadership of Spanish teacher Señora Donna Barry Sampanes, this year’s drive was particularly powerful. “We’re creating awareness of the need… Read More »

What’s So Special About Normal Saline?

I’m stumped! Of all the prescriptions I’ve filled over the years living with chronic illness, guess what is the toughest to get my hands on? Pre-filled saline syringes. Yep – you read it right! Normal saline! These 10 ml syringes don’t even have needles! I use them to “flush the line” of the drain from… Read More »

Pretty Coincidence

Smile for the camera This afternoon I had the privilege of doing a portrait shoot at my home for Gwinnett Magazine‘s “Heroes Project.”  Gwinnett Magazine periodically features fighters & survivors of various types of cancer to raise awareness and to inspire people to get involved in the fight against “the Big C.” When Danny the… Read More »

Hope = Reasonable Expectations

Six Month Post-SCT Assessment Gives Me Hope February 3, 2014:  The news is good. My Dear Donor’s hematapoietic (blood forming) stem cells are engrafted in my bones. My bone marrow is not hard and fibrotic like it was six months ago. We hope it once again becomes a gracious host for the marrow and stem… Read More »

Some Life Lessons Take a Lifetime

Patience and Pacing If you let go a little, you will have a little peace. If you let go a lot, you will have a lot of peace. If you let go completely, you will know complete peace and freedom. Your struggles with the world will come to an end. ~ Ajahn Chah, A Still… Read More »

Life Saving Eagle Scout Project: Building the Marrow Donor Registry

Tween Saves Lives When the time came for my nephew Patrick to design a project for his Eagle Scout, he decided to take on something that is usually done by adults. He organized a registry drive to get healthy adults to join the National Marrow Donor Registry.  Did I mention he is 12 years old?… Read More »

STEM CELL TRANSPLANT STEP 1: MEDICAL EVALUATION

DONOR NEWS!! I learned this week that my life saving blood stem cell donor is a 22 year old man who lives outside the United States. He has agreed to the stem cell collection schedule my doctor proposed. How cool is that?! Young, healthy stem cells ~ it doesn’t get any better.  As a patient,… Read More »

The Call and The Twitter

The CALL Yesterday afternoon I received “The Call” we’ve been hoping for. I had to pull the car off the road so I could concentrate. It was my stem cell transplant coordinator. She said that there are 2 perfect matching donors (10 for 10 match of HLA tissue sequence) for me. One of them is… Read More »

Beating the Odds Starts with a Swab

When I began this journey 3 months ago, I was pretty confident that one of my four siblings would be my match (a 10 for 10 match of HLA-types; it’s not about matching blood type).  Each had a 25% chance, so wouldn’t 1 of the 4 have to match?   That’s not how probabilities work, I learned. … Read More »

We’ve Got Some Great Cheeks in Gwinnett County!

252 and Counting!That’s how many living angels came to Peachtree Ridge High School last Friday and joined the National Bone Marrow Donor Registry. Libbi, Dave, Marina, Robert at the close of the drive Our dear friends and neighbors, Libbi and David Wengryn, asked our kids’ high school officials if we could hold a Bone Marrow… Read More »