Tag Archives: secondary myelofibrosis

Translational Research: From the Lab to the Clinic

I had the coolest field trip today. I visited the Mullally lab, an independent research lab at Brigham and Women’s Hospital, Department of Hematology, with Harvard Medical School. It is a translational hematology research lab. Dr. Ann Mullally and her team of impressive scientists test theories to answer some of the pesky questions people living… Read More »

Some Life Lessons Take a Lifetime

Patience and Pacing If you let go a little, you will have a little peace. If you let go a lot, you will have a lot of peace. If you let go completely, you will know complete peace and freedom. Your struggles with the world will come to an end. ~ Ajahn Chah, A Still… Read More »

Jakafi to the Rescue

Myelofibrosis Treatment Banishes Behcet’s… Coincidence? I think Not About one month after my Autumn 2009 PV (polycythemia vera) diagnosis, I started getting unexplainable lesions in most inconvenient locations (I’ve shared this over a year ago). After several months of excluding many possibilities, it was diagnosed as “Behcet’s Disease/Syndrome” or “Probably Behcet’s” in March, 2010.  I… Read More »

Let’s Kick It Up a Notch (or more) — to Mayo Clinic

I had a Bone Marrow Biopsy done at Northside Hospital on January 24th. The bone marrow biopsy and aspiration report came back with some news:  lots more reticulan fibers and fibrosis “consistent with post-polycythemic myelofibrosis.”  The report didn’t look good from this patient’s perspective but I was pleased that I wouldn’t have to wait too long… Read More »