This happened to me, two years before I was diagnosed with Polycythemia Vera.
Now I know that my experience is shared with other women with MPNs. The number of MPN patients is small and I do not wish this disease on anyone. Yet there is some macabre comfort in knowing that I’m not alone.
Hopefully, when people present with abdominal venous thromboses, doctors will now add MPNs to their list of possible causes. Testing and further treatment will then commence before another adverse event occurs.